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Collaborations

PKD International works with a range of organisations around the world to advance research, support patients, and raise awareness of Polycystic Kidney Disease.

Our collaborating partners are listed below.

AD(H)PKD

Autosomal Dominant Polycystic Kidney Disease research network.

ADPedKD

International registry for children and young adults with ADPKD.

Articyst

Open Science in Kidney Research: devising open science practices to promote research and treatment of cystic kidney disease.

Ciliopathy Alliance

International alliance for ciliopathy patient organisations.

Ciliopathy Alliance

ERA European Renal Association

European Renal Association, advancing nephrology research and clinical practice.

ERA European Renal Association

ERKNet

The European Rare Kidney Disease Reference Network.

FEDERG

Federation of European Rare Disease Groups.

Novartis

Global healthcare company supporting PKD research and treatment.

OSCARS

Open Science Cluster Action for Research and Society.

Robespierre Communications

Communications consultancy supporting PKDI outreach.

Robespierre Communications

SoftForge

Web development and digital services partner.

STOP PKD

SGLT2 Inhibition for the treatment of polycystic kidney disease study.

TheRaCil

Therapeutics for Renal Ciliopathies research consortium.

VERTEX

Biotechnology company investing in treatments for serious diseases.