About Us


June 2010

The international PKD community was initiated by the PKD Foundation in 2007. The idea was to unite the national patient groups who already fund and organize very successful activities (patient support, research, conferences, awareness …) in their home countries.

In 2009, a working group set up the guidelines for an international patient organization and during the International ERA-EDTA (worldwide meeting of nephrologists) in Munich 2010 a strategic plan was worked out.

In April 2011, PKD patients groups from Austria, France, Germany, Italy, Switzerland and the UK met in Geneva to establish PKD International in Geneva and were joined the same day by the PKD Foundation and PKD Canada.

Invitation to Patient groups and experts worldwide

All PKD patient associations worldwide and all PKD experts worldwide are invited to join this alliance!

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